Wednesday, July 9, 2008






Next It was off to the Pediatric Opthamoligist for more tests on Hailey and to get a new prescription for Jayden and Hailey both. Last time Dr. Banuelos didn't want to give them a new prescription because she was unsure of the Retinal Problem. Hailey had a few tests done and I'm not sure what all of them were for. But she had an ultrasound on her eye where the doctor confirmed her diagnosis of posterior nanopthalmos. (a rare condition causing a small or deformed back part of the eye) She was so good during all of her tests. The ultrasound test took at least 30 minutes and she had to be very still and close her eye just right while the Doctor probed the whole eye area. Everyone was impressed and I was relieved that she didn't need any sedation to do the tests.



After the tests the Doctor was talking to me and the kids were playing about 5 feet away in a kids area. All of the sudden Jayden comes up to me and tells me that he cant find Hailey. Me and 4 or 5 of the staff including the Doctor were looking for her...scary. (this was a huge building with halls and rooms galore) The resident doctor found her hiding under a chair in the next lobby over. So after waisting 10 minutes of the doctors time I very sternly told them to stay right here and play while I finished talking to the Doctor. They usually are very good at staying by me, I don't know what was up with them. Not more than 5 minutes later I look over and they were both gone. So we went searching again....This time we found them in the men's bathroom, and yes I had to go in after Hailey. If they hadn't been so good for all of their test that may have been it for them. I was so embarrassed!!



Both Doctors in Tucson think I should see a Pediatric Retinal Specialists in Michigan, Dr. Trese, to see if he can help Hailey. They say once I get his opinion, I have gone to the top, He is the best of the best. The next morning my doctor in Utah, Dr Abrahms, called. I told him that they want me to see Dr. Trese in Michigan. He told me that Dr. Trese is a friend of his and that he has already been emailing information on Hailey to him. Right now Dr. Trese is in China doing research so when he gets back he will have all the images waiting for him. Most of them can't be emailed or faxed. Dr. Abrams said that if Dr.Trese can help me he will be able to tell by looking at the images. The images should tell him more than what he can see by looking at her in person. So now we have a diagnosis but we are back to waiting.

3 comments:

Laura said...

Oh Bekah, I know what this is like. The eye doctor and embarrassing kid chaos. I think everytime I leave the pediatric opthamologist's office, I am lecturing my kids to "never do that again!" What's up with that? I think the "eye" doctor is somehow even MORE boring than the regular doctor for these kids.

Colton and Ashley said...

YIKES! Good job for being a trooper Hailey! Except for the disappearing part! Don't drive your mom crazy! We love all of you guys and are praying for your health! Hopefully the Dr. In Michigan will have some answers! Keep your fingers crossed! It will be okay Bekah! Hang in there and call me if you need to talk! I wish I was there to help! Love you!

Britney and Jaren Jensen said...

You are so brave Hailey girl! We love you and are glad to love close now :) Bekah, I don't know how you do it but you do and you are an amazing mom! I know the the lord will bless your family because you are so faithful & you are definately doing your part! love ya!